Well, it's been a week- thank you all so much for continuing to pray for our family!
Brady's stats are awesome today, he came down or off quite a few meds today. They are expecting him to come off his ventilator tomorrow- yay!
Part of the process of him coming off his vent is weaning him off all sedation. Right now, he is at about 1/4 of what he was on at the peak of his treatment. This basically means that he is awake for most of the day. While it's so good to see him up and looking at us, it is really hard to see him so upset that he has this tube down his throat. He can't make any sounds, and he just tries to get it out all the time, so he has arm immobilizers on both to try and prevent him from ripping his tubing and lines out.
Since he felt everything today, he had a hard time sleeping. He could only be pacified with someone patting his chest and stroking the hairs on his head... poor little man. After about 30 minutes of work, he'd fall asleep for 45 minutes or so, or until he jerked himself into a position where the breathing tube wouldn't follow. At one point, Brad's mom, his nurse and I all worked sequentially for about 4 hours to get him to nap. Whew! Right now we've barricaded his door, so any non-imperative checkins from his medical staff can't interrupt this much-needed rest.
After the tube comes out, it should only be a few more days here! As wonderful as this facility is (they really have thought of everything), Brad and I can't wait to have our little boy back to being his giggly little self.
You don't know how much you're helping just by giving us feedback to these posts. It's easy to feel isolated here, or that this is something we are struggling with alone, but any time I start to feel that way, I get a Facebook alert that someone commented on a post, or an email with a kind word. It all helps.
Pray for Brady tonight, and that he's able to get some good sleep, and that Brady and I would too...
Gotta go, he's up!
You are not alone! There's a small army of people here in Milwaukee praying for Brady, and you and Brad, plus all my NPU friends who live all over the country. Uncle John and I have been with you in spirit every day - we have not stopped praying, or holding you close in our hearts. We will pray tonight, especially, for rest for you all, despite the vent. Send your calming, restful Spirit, Lord!xo
ReplyDeleteMeghan, I think of you everyday and feel so much for you, Brad & Brady. You are a wonderful Mom. I can imagine how hard it is to see Brady struggle. I am thrilled to hear he's coming home soon!!! I send you all love. Becky
ReplyDeleteMeghan, Brad and gang...your family at Athletico Vernon Hills are thinking about you and hope Brady continues to get well and you all can go home soon! Let us know if you need anything...Godspeed!
ReplyDeleteI am grateful Brady is transcending lifes obstacles and that he has such a wonderful loving mother to hold his hand the whole way. Thank you for educating and updating us as well as using blogging as a positive outlet for you during this scary time. This really puts life in perspective and makes the small things we usually sweat seem so insignificant. I'm sure this has helped you shift and transform even more into that person you want to be, living God's purpose. Mixed emotions fill my eyes with tears while trying to read about your journey from day one. You and Brady are very special souls who touch many peoples lives. We are lucky to have you. I keep you in my prayers/meditations :-) ♡
ReplyDelete♥ Valeria
Meghan and Brad- I am so glad to hear little Brady is doing better! I will be praying for a restful night for all of you. Thank you so much for this blog. It is a wonderful testimony of how to lean on and trust God in a crisis. God bless you guys!
ReplyDeleteLarissa Greenfield