Yesterday was hard. Brady has been off his sedation and so as a result he is more awake. That meant crabby. But thankfully, we had a nurse that we had our first 3 days here, and I felt a little better sneaking off to take a nap here or there. Today was awesome. Brady was almost back to his old self, laughing, trying to talk, sitting up and smiling constantly. It was SO GOOD to see that again. I know it was good for Brad too, because that's been hard for our family to be apart this week.
We were told today we may get discharged Monday. Pray that Brady is healed and ready to get out of here, pray that we learn how to give his new meds correctly. Pray for the gunk in his lungs that never seems to dissipate. Pray for optimism in a situation that seems enesa.
I'm sorry this is so brief... We are so glad to have Brad back with us, and pretty tired of being here, but thankful for warm beds and good food, great care for our little man and for prayer warriors all over the world. We love you.
YAY!!!!! It is SO good to see him off the ventilator, sitting up and SMILING!!! He so SOOOO SO cute :)
ReplyDeleteSorry-you don't even know me, but my mom (Karen Porter) is friends with Brad's mom and told me what was going on with Brady.
We have a 5 1/2 month old who spent the first month of his life in the Lurie NICU at CDH so a lot of your posts are all too familiar. Charlie was on a ventilator too and I cannot imagine going through that at Brady's age when he is usually so active. C also had an ASD when he was born so we have to go get that checked on next month. On Valentines day, Charlie came down with bronchiolitis, a form of RSV, so we made a couple of trips to the ER but luckily it did not get bad enough to stay. Living at the hospital like it's your job is so hard but you guys are doing great. We have been praying for Brady's quick & smooth recovery and strength for you two as well. I hope he busts outta there in the next day or two!
xoxo
Maggie McGrath
Still praying, thankful for this good news, and loving these photos of a smiling Brady! Oh - and still sending much love to you and Brad. XO
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